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[Helminthic therapy support groups]
Since 2003, when [TSO](javascript:void\(0\);) became the first [helminth](javascript:void\(0\);) to be made available for use by self-treaters, knowledge about this subject has evolved continuously. As a result, some of the information in the groups listed below has become obsolete, so details in older posts should not be relied upon, and details should always be checked against the information in this wiki, which is kept up to date.
## Inhaltsverzeichnis
- [1 General discussion groups]
- [2 Helminth incubation group]
- [3 Support group welcome message and guidelines]
- [3.1 Personal privacy on Facebook]
- [3.2 Abbreviations we use]
- [3.3 We have ALL the information you need!]
- [3.4 Obtaining helminths and protecting the supply]
- [3.5 Group focus]
- [3.6 Post management]
- [4 History of the helminthic therapy groups]
- [5 See also]
## General discussion groups
- [**Helminthic Therapy Support**] (Facebook) - 9,210 members. A vibrant and friendly community with many experienced and knowledgeable members.
Due to the high success rate of [helminthic therapy](javascript:void\(0\);) (approximately 75% eventually experience improvement in their health), this group’s membership is constantly revolving. People join, spend time researching the material in this wiki and then order worms. Once their health has improved, they no longer need the group so typically reduce their involvement, or even leave the group, to move on with their lives and enjoy their improved health. Consequently, this group's currently active membership represents only a fraction of the global community of [helminthic therapy](javascript:void\(0\);) self-treaters, and they tend to be people who are still in the early stages of treatment or with more severe, complex or longstanding health issues who need help with optimising or troubleshooting the therapy. The guide, [How to Get Help] has suggestions for best use of the group.
- [**Helminthic Therapy**] (Reddit) - 280 members.
- [**Helminthes thérapeutiques**] (Facebook) - 130 membres. Un groupe pour francophones.
- [**Helminthic Therapy**] (MeWe) - 120 members. Currently dormant.
- [**Helminthic Therapy Support**] (Discord) - 80 members.
## [Helminth](javascript:void\(0\);) incubation group
- [**Helminth Incubation Group**] (Facebook) - 1,130 members. A community of [helminth](javascript:void\(0\);) growers who are mainly cultivating **[NA](javascript:void\(0\);)**. A few have also grown their own **[HDC](javascript:void\(0\);)**, but **[TTO](javascript:void\(0\);)** is rarely cultivated by home growers due to the more complex process.
For detailed instructions on how to cultivate [NA](javascript:void\(0\);), [HDC](javascript:void\(0\);) and [TTO](javascript:void\(0\);), see [**Helminth incubation methods**] "Helminth incubation").
## Support group welcome message and guidelines
If you are a new member of one of the [helminthic therapy](javascript:void\(0\);) support groups, we extend **a very warm welcome** to you!
**1\. We have ALL the information you need!**
This [Helminthic Therapy](javascript:void\(0\);) wiki is the world’s largest database of information about the therapy.
- [**Home page**] "Helminthic Therapy Wiki")
- [**Index to topics**] "Index to topics")
- [**List of pages**] "Special:AllPages")
- [**Sitemap**] "Sitemap")
**2\. Please do not post to the group until you have at least read the introductory page.**
This includes everything you need to know in order to understand and get started with this therapy.
- [**Introduction to helminthic therapy**] "Introduction to helminthic therapy")
**3\. Before posting a question, search both this wiki and the group’s post archive.**
Most questions about this therapy are answered in this wiki or in past comments to the group. Use the search box available on every wiki page, and the group’s search tool.
**4\. We only accept posts about [helminthic therapy](javascript:void\(0\);).**
We are not concerned with any other topic, or with any form of [parasite](javascript:void\(0\);) other than the four species of [**therapeutic helminth**] "Introduction to helminthic therapy") available from the [**helminth providers**] "Helminth providers"), unless research has shown that another species, or its products, may have a therapeutic [effect](javascript:void\(0\);).
**5\. Please do not ask for [helminth](javascript:void\(0\);) provider recommendations.**
The selection of a [helminth](javascript:void\(0\);) supplier needs to be approached on an individual basis, bearing in mind the customer's location, which organism they are seeking and which pricing and payment options they prefer. All the details required in order to make a selection are on the following page.
- [**Helminth providers**] "Helminth providers")
**6\. Never mention the location - even the country - of a [helminth](javascript:void\(0\);) provider.**
This is essential to protect the providers from unhelpful regulatory attention. If you need details that are not in the wiki, contact the provider directly.
**7\. Never reveal details about [helminth](javascript:void\(0\);) shipments or their contents.**
Details or photographs of packages, or their contents, could be used to identify and block future shipments to you and other self-treaters.
**8\. This group is moderated.**
Moderators will endeavour to ensure that posts are on topic, and that the information in them is accurate. Members may occasionally be asked to edit a post or, in some cases, a post may be removed. Members who block a moderator or admin are removed from the group.
**9\. Please read the rest of our welcome message, which continues below.**
The following details include abbreviations that we use, plus information about other important matters that will help you and others get the most from group membership.
### Personal privacy on Facebook
We are a “Private” group, which means that no one outside the group can see our members’ posts. However, anyone can see the group and its members in News Feed, searches and other places on Facebook, and Facebook does encourage people to join the same groups as their friends, which it does by showing them the member’s avatar above the names of groups they are in. Unfortunately, this feature can’t be turned off, even if members prevent others from seeing the groups they’ve joined. So, if you think this might create a problem for you, it may be worth having a response prepared in case you’re asked what the “[Helminthic Therapy](javascript:void\(0\);)” group is about. This name is the only clue that others will have about what kind of group it is, but anyone who is still concerned about their friends seeing this can rejoin the group after creating a new Facebook account using an alias.
To review the privacy settings for a Private group, see [this page] in the Facebook Help Centre.
### Abbreviations we use
[HD](javascript:void\(0\);) - the rat [tapeworm](javascript:void\(0\);), Himenolepis diminuta
[HDC](javascript:void\(0\);) - the cysticercoids ([larvae](javascript:void\(0\);)) of the rat [tapeworm](javascript:void\(0\);), Himenolepis diminuta
[HK](javascript:void\(0\);) - [hookworm](javascript:void\(0\);), referring to the human [hookworm](javascript:void\(0\);), [Necator americanus](javascript:void\(0\);)
[HT](javascript:void\(0\);) - [helminthic therapy](javascript:void\(0\);)
[HW](javascript:void\(0\);) - [hookworm](javascript:void\(0\);), referring to the human [hookworm](javascript:void\(0\);), [Necator americanus](javascript:void\(0\);)
[NA](javascript:void\(0\);) - the human [hookworm](javascript:void\(0\);), [Necator americanus](javascript:void\(0\);)
[TS](javascript:void\(0\);) - the porcine (pig) [whipworm](javascript:void\(0\);), [Trichuris suis](javascript:void\(0\);)
[TSO](javascript:void\(0\);) - the ova (eggs) of the porcine (pig) [whipworm](javascript:void\(0\);), [Trichuris suis](javascript:void\(0\);)
[TT](javascript:void\(0\);) - the human [whipworm](javascript:void\(0\);), [Trichuris trichiura](javascript:void\(0\);)
[TTO](javascript:void\(0\);) - the ova (eggs) of the human [whipworm](javascript:void\(0\);), [Trichuris trichiura](javascript:void\(0\);)
[WW](javascript:void\(0\);) - [whipworm](javascript:void\(0\);), usually referring to the human [whipworm](javascript:void\(0\);), [Trichuris trichiura](javascript:void\(0\);), but, alternatively, [Trichuris suis](javascript:void\(0\);)
### We have ALL the information you need!
1\. **[Helminthic Therapy](javascript:void\(0\);) wiki**.
All the wiki’s pages can be read in any language by using the Translate tool at the foot of the left-hand sidebar on any page.
New members will sometimes reject the material in the wiki, saying that they prefer to have feedback from “real people” with “real experience”, but this is, in fact, exactly what the wiki offers. The site’s contents have been built using the shared anecdotes of thousands of [helminth](javascript:void\(0\);) self-treaters, many of whom have now left the group after having learned how to use [helminths](javascript:void\(0\);) to successfully manage their respective conditions. By collating all this past experience, the wiki offers many more examples of the real experience of real people than are available at any one time in the group. The site is updated continually and new details are added immediately they appear in the group.
![Quotein.gif]
The first thing one should do when considering [helminthic therapy](javascript:void\(0\);) is read the [Helminthic Therapy](javascript:void\(0\);) Wiki. I read pretty much every page on this wiki before reaching out to order. [\[1\]]
![Quotein.gif]
The only bumps I have had as a self treater, was when I didn't check the wiki. [\[2\]]
2\. **Group guides**
The Facebook [Helminthic Therapy](javascript:void\(0\);) Support group has Guides presenting basic information on how to use the group for support. The Guides are self-explanatory, but finding them can be a little difficult. In a browser, they are located in the tabs shown just below the bar of icons of recently active members, or at [this direct link]
[![guides browser.jpg]]
On a smartphone, they may be located in the tabs, as shown above, or in one of several different facebook menus, such as those below.
[![HOW TO find guides phone.jpg]]
3\. **Group files**
The [files section] contains a few additional materials that may be of interest to members.
NB. When posts written before February 2017 refer to documents in the files section that can no longer be found, their contents will have been transferred to this wiki, which contains the latest details about everything.
### Obtaining [helminths](javascript:void\(0\);) and protecting the supply
There are complex differences between the products and services offered by the [helminth](javascript:void\(0\);) providers, so the selection of a provider needs to be approached on an individual basis, according to which organisms are most likely to meet the individual [self-treater](javascript:void\(0\);)’s specific needs, which companies sell these particular worms and will ship them to the [self-treater](javascript:void\(0\);)’s locality, and which services and pricing options will be most appropriate to them. Seeking, or offering, a provider recommendation is not helpful because everyone’s health issues, needs and circumstances are different. We therefore request that you DO NOT ASK THE GROUP FOR A PROVIDER RECOMMENDATION, and not just for the foregoing reasons, but also because doing this could attract comments from other members who may not have read this document and whose responses may place one or more of our providers at risk. (There’s more about this below.)
All the information necessary to make an informed choice of provider is available from the following two pages in this wiki.
- [**Helminth Providers**] "Helminth providers"). (It’s important to read the entire page and not just the list of companies.)
- [**Helminth Provider Reviews**] "Helminth provider reviews"). (Customer feedback about the quality of service offered by each of the providers.)
Since the FDA has issued an Import Alert effectively banning the shipping of all therapeutic [helminths](javascript:void\(0\);) into the US (for more about this see [**here**]PDF ansehen
"Of Poops and Parasites.pdf")), and since the Customs departments in some other countries have occasionally intercepted and destroyed packages that they believed contained [helminths](javascript:void\(0\);), we need to avoid revealing details about the shipping arrangements of the [helminth](javascript:void\(0\);) providers, especially the locations they ship from and the physical appearance of their packages. Details or photographs of packages, or their contents, could be used to identify and block future shipments.
While some providers are open about where their labs are located and where they ship from, others need to keep these details strictly under wraps. Revealing the whereabouts of a provider’s base could lead to that company being closed down and their customers losing access to the [helminths](javascript:void\(0\);) they need. It is therefore absolutely essential that members NEVER REVEAL THE LOCATION OF ANY PROVIDER IN POSTS TO THE GROUP, AND NEVER ASK QUESTIONS THAT MIGHT LEAD OTHERS TO DO THIS.
If you ever agree to be interviewed about your treatment by a representative of the media, please do not reveal where the package(s) you received were shipped from and, ideally, don’t even mention the provider by name. Just say that you got your worms from a “commercial [helminth](javascript:void\(0\);) provider”.
In view of the above, we generally avoid discussing individual providers in the group unless someone has a question that is not answered on the **[Helminth](javascript:void\(0\);) Providers** and **[Helminth](javascript:void\(0\);) Provider Reviews** pages of this wiki. If the quality of a provider’s service has fallen significantly below an acceptable standard, the relevant details can be shared using the [Provider Reviews Form] However, it is not helpful to draw attention to isolated incidences of delayed emails or deliveries, or [hookworm](javascript:void\(0\);) doses that are not viable on arrival, since these are all inevitable from time to time and not a reflection on the quality of service offered by the provider involved.
### Group focus
Our focus in this group is on the science, management, experience and results of [helminthic therapy](javascript:void\(0\);). Our aim is to share, and add to, what is known about [helminthic therapy](javascript:void\(0\);) with a view to improving our own heath and also helping others to achieve their respective health goals. We therefore welcome comments from anyone with an interest in [helminthic therapy](javascript:void\(0\);), whether researchers, clinicians, providers or self-treaters.
Due to the fact that [helminthic therapy](javascript:void\(0\);) is effective in approximately 75% of cases of inflammation, autoimmunity and allergy, most of our members eventually reach a point where they no longer need our support, and leave the group. The result of this is that many of our active members are still in the early stages of the therapy, so the discussion tends to centre around trouble-shooting - managing any initial side effects, establishing an effective dosing regimen and supporting new members through the often lengthy wait while their worms begin to work. This can unfortunately give new members the impression that this therapy is troublesome, difficult to manage and not very effective, but this is not the case, as can be seen very clearly from reading the contents of this wiki.
We are not concerned with [parasites](javascript:void\(0\);) other than the four “therapeutic” species available from the [helminth](javascript:void\(0\);) providers, unless research has shown that another species may also have therapeutic effects. Posts about non-therapeutic [parasites](javascript:void\(0\);) are generally not helpful, especially when these link to examples of sensationalist journalism and/or scary-looking photographs. In fact, these can be disturbing to members who have an aversion to worms and who may already be struggling to come to terms with the nature of the therapy.
### Post management
In this internet age, information spreads like wildfire, and incorrect information about [helminthic therapy](javascript:void\(0\);) can potentially threaten people’s safety and possibly reduce their chances of success with the therapy. Moderators will therefore endeavour to ensure that the information in posts is accurate. This will usually be accomplished by posting responses containing correct details, but it might occasionally be necessary to ask a member to edit a post or, in some cases, a post may be removed altogether.
Any posts of a commercial nature, or seeking charitable donations, will be removed, as will those that are not directly about [helminthic therapy](javascript:void\(0\);). Posts about vaccination will also be removed because these invariably invite controversy, can cause conflict, and may threaten the future of the group. There is a page in this wiki on [**helminthic therapy and vaccines**] "Helminthic therapy and vaccines") for those who want information about this.
We are not a parasitology group, nor a [microbiome](javascript:void\(0\);) or autoimmune disease group, so we only accept posts about these topics if they fall within the context of [helminthic therapy](javascript:void\(0\);), or are offered as constructive suggestions to a specific member to help with the health problems for which they are using [helminthic therapy](javascript:void\(0\);).
Members who wish to post questions relating to their own therapy should be aware that group members cannot give medical advice, and that such questions are best addressed in consultation with a personal physician and/or a [helminth](javascript:void\(0\);) provider.
When posting comments or questions about your personal experience with [HT](javascript:void\(0\);), it will greatly help other members if you include all of the following details.
- disease(s) being treated
- details of other treatment modalities that you are using concurrently with [HT](javascript:void\(0\);)
- species of worm used
- total length of time that worms have been hosted
- rough dates of doses, or the length of the intervals between them
- size of doses
When posting updates about your progress, it helps other members to follow the sequence of events if all the updates are added to a single thread. (Clicking on the date of a post will reveal its URL in your browser. This can then be copied and saved for future use whenever you want to add updates to that post.)
## History of the [helminthic therapy](javascript:void\(0\);) groups
[Helminthic therapy](javascript:void\(0\);) became a reality in 2003 when the first [helminth](javascript:void\(0\);) was made available commercially for therapeutic use. After a period of development commencing in the mid 1990s, the pig [whipworm](javascript:void\(0\);), [Trichuris suis](javascript:void\(0\);), which is sold as microscopic ova and referred to as [TSO](javascript:void\(0\);), was introduced for sale by entrepreneur [Detlev Goj] Initially, [TSO](javascript:void\(0\);) was sold through Goj’s first company, Ovamed, but is now supplied by [Tanawisa]
The next [helminth](javascript:void\(0\);) to be made available for therapy was introduced four years later, and this was the human [hookworm](javascript:void\(0\);), [Necator americanus](javascript:void\(0\);), known as [NA](javascript:void\(0\);). This enterprise brought together two men: Garin Aglietti, a former medical student, and [**Jasper Lawrence**] "Jasper Lawrence and helminthic therapy"), who was looking for new opportunities following the collapse of his marketing agency.
Together with Marc Dellerba - a clinical scientist and Lawrence’s brother-in-law - Aglietti and Lawrence formed [Autoimmune Therapies] (AIT), which began selling [NA](javascript:void\(0\);) [larvae](javascript:void\(0\);) from the clinic of a Mexican doctor, Jorges Llamas, in Tijuana. However, it wasn’t long before Aglietti found it impossible to work with Lawrence and, in 2008, left to form his own company, [Worm Therapy] while Lawrence continued to run AIT from his home in the US, supported by UK-based Dellerba.
Soon after the formation of AIT, Lawrence started a discussion group, the **[Helminthic Therapy](javascript:void\(0\);) forum** on Yahoo, which was the first online meeting place for those interested in this therapy.
In 2009, AIT began offering the human [whipworm](javascript:void\(0\);), [Trichuris trichiura](javascript:void\(0\);) ([TTO](javascript:void\(0\);)) in addition to [NA](javascript:void\(0\);), and, shortly after this, Lawrence persuaded a number of regular contributors to the Yahoo forum to accept blogs that he created under the AIT umbrella. One of these bloggers was [**John Scott**] "John Scott and helminthic therapy"), who had successfully put his Crohn’s disease and severe food intolerance into remission using [NA](javascript:void\(0\);) purchased from AIT. Scott had also begun advocating for [helminthic therapy](javascript:void\(0\);) [elsewhere online] and, after being asked to help moderate the Yahoo forum in June 2010, assumed ownership of the group a year later when Lawrence lost interest in social media and indicated that he was considering deleting the group.
Someone else who was to play a significant role in the online [helminthic therapy](javascript:void\(0\);) community for several years was a systems administrator from New York who created a Facebook account in the name of [“Herbert Smith”]PDF ansehen
"Herbert Smith and Helminthic Therapy.pdf"). After joining the Yahoo forum in 2008, Smith told Scott that he believed [helminthic therapy](javascript:void\(0\);) was ripe for monetisation, and subsequently struck a deal with Lawrence whereby he would receive a commission whenever someone he had referred to AIT followed through with a purchase. Once this deal was in place, Smith began to vigorously promote [helminthic therapy](javascript:void\(0\);), and, in November 2010, created the **[Helminthic Therapy](javascript:void\(0\);) Users Discussion** on Facebook.
Smith went to considerable lengths to promote himself online, creating accounts for his alias on Yahoo, Facebook, LinkedIn, Pinterest and elsewhere, before “friending” hundreds of people on Facebook and adding them, sometimes without their knowledge, to his group.
The relationship between Smith and Lawrence broke down when Lawrence discovered that Smith was not using his real name in his dealings with the people he approached, nor telling them that he stood to benefit financially from his relationship with them. But, when Lawrence pulled out of the deal, he failed to pay Smith what he was owed, whereupon Smith began a campaign of relentless disparagement of Lawrence and AIT.
Thanks to Smith’s promotional efforts, his Users group had, by then, become the most active [helminthic therapy](javascript:void\(0\);) group on Facebook and was increasingly used by clients of AIT as well as those of Worm Therapy, which Smith began to promote in preference to AIT. However, Smith’s strident partisan position polarised the community and left many members of his Users group feeling uncomfortable, with the result that several of them approached Scott with a request for a new “provider-agnostic” group on Facebook in which the conversation would focus on the therapy itself rather than on those providing [helminths](javascript:void\(0\);). In response, Scott created the [**Helminthic Therapy Support group**] in March 2012 - the first truly independent group run by and for the entire [helminthic therapy](javascript:void\(0\);) community.
A fourth therapeutic [helminth](javascript:void\(0\);) species was introduced in 2013 by the late [Don Donahue] a medical doctor from the US who founded [Biome Restoration] to supply the cysticercoids of the rat [tapeworm](javascript:void\(0\);), [Hymenolepis diminuta](javascript:void\(0\);), known as [HDC](javascript:void\(0\);). Donahue brought in Dellerba - who, by this time, had already left AIT - and Judy Chinitz, a nutritionist and long-standing advocate for [helminthic therapy](javascript:void\(0\);), to run the company’s laboratory and customer services department respectively. Chinitz remained with the company until Dec 2021.
In March 2014, an enthusiastic user of [HDC](javascript:void\(0\);) created the **Hymenolepis ([HDC](javascript:void\(0\);)) User Discussion and Support group** on Facebook to share experience with the new species but, like several other [helminthic therapy](javascript:void\(0\);) groups that were created for specific purposes, this only ever gained a very limited membership and has since been deleted.
Smith continued to cause discord within the [helminthic therapy](javascript:void\(0\);) community until Facebook discovered that his identity was fake and, in late 2016, deleted his account. This action removed every shred of evidence from the platform that [“Herbert Smith”]PDF ansehen
"Herbert Smith and Helminthic Therapy.pdf") had ever existed, and the Users group he had created and once so assiduously nurtured, fell into disuse as people turned instead to the [**Helminthic Therapy Support group**]
Scott created the [**Helminthic Therapy wiki**] at the beginning of 2017 to accommodate all the data he had mined over the previous 7 years from the available science and posts to the **Yahoo [Helminthic Therapy](javascript:void\(0\);) forum**, the [**Facebook Helminthic Therapy Support group**] and elsewhere. Around the same time, several new [**helminth providers**] "Helminth providers") began selling _individual_ doses of [hookworm](javascript:void\(0\);) [larvae](javascript:void\(0\);), thus freeing self-treaters from reliance on the long-term contacts by which AIT and Worm Therapy had previously sold this organism. The combination of easier access to [NA](javascript:void\(0\);) with the free availability in the wiki of detailed information about its use, ushered in a new chapter in the story of the therapeutic use of [hookworms](javascript:void\(0\);).
Easier access to [NA](javascript:void\(0\);) at reasonable prices also greatly reduced activity in a small **[Hookworm](javascript:void\(0\);) Donors group** that had been created on Yahoo in early 2013 by several Australians to facilitate the sharing of [hookworm](javascript:void\(0\);) [larvae](javascript:void\(0\);). This group, which had already become dormant as a result of the disappearance of its owner and a loss of interest by its moderators, was effectively closed in Dec 2019, when Yahoo removed all user content from its groups and reduced them to email lists. This action by Yahoo also stripped the archive of 11,000 posts from the **Yahoo [Helminthic Therapy](javascript:void\(0\);) forum**, which finally disappeared in Dec 2020 when Yahoo closed down its groups operation.
The groups that exist today are listed at the top of this page. The [**Helminthic Therapy Support group**] on Facebook meets the needs of users of all four [helminth](javascript:void\(0\);) species in an atmosphere free from both commercial bias and manipulation by those with personal agendas. However, increasing censorship on the part of Facebook, and the platform's unjustified deletion of the accounts of several [HT](javascript:void\(0\);) community members, prompted the creation of the [**Helminthic Therapy group**] on MeWe in late 2020 as a venue for those who wished to leave Facebook, and as a backup in case of the loss of the main group to action by Facebook, who were gaining a reputation in the early stages of the Covid pandemic for deleting certain health groups without warning or justification. The MeWe group has, however, remained largely inactive since its creation, with the main group on Facebook continuing to be favoured by the vast majority of self-treaters. There are also small groups on [**Reddit**] and [**Discord**] and the first group for French speakers, [**Helminthes thérapeutiques**] which was founded on Facebook in August 2021. The more specialised needs of those who are growing their own [helminths](javascript:void\(0\);) at home are met by the [**Helminth Incubation group**] on Facebook. Groups not listed above have either been archived or deleted.
## See also
The full, detailed history of this therapy.
- [**The history of helminthic therapy**] "The history of helminthic therapy").
Since 2003, when [TSO](javascript:void\(0\);) became the first [helminth](javascript:void\(0\);) to be made available for use by self-treaters, knowledge about this subject has evolved continuously. As a result, some of the information in the groups listed below has become obsolete, so details in older posts should not be relied upon, and details should always be checked against the information in this wiki, which is kept up to date.
## Inhaltsverzeichnis
- [1 General discussion groups]
- [2 Helminth incubation group]
- [3 Support group welcome message and guidelines]
- [3.1 Personal privacy on Facebook]
- [3.2 Abbreviations we use]
- [3.3 We have ALL the information you need!]
- [3.4 Obtaining helminths and protecting the supply]
- [3.5 Group focus]
- [3.6 Post management]
- [4 History of the helminthic therapy groups]
- [5 See also]
## General discussion groups
- [**Helminthic Therapy Support**] (Facebook) - 9,210 members. A vibrant and friendly community with many experienced and knowledgeable members.
Due to the high success rate of [helminthic therapy](javascript:void\(0\);) (approximately 75% eventually experience improvement in their health), this group’s membership is constantly revolving. People join, spend time researching the material in this wiki and then order worms. Once their health has improved, they no longer need the group so typically reduce their involvement, or even leave the group, to move on with their lives and enjoy their improved health. Consequently, this group's currently active membership represents only a fraction of the global community of [helminthic therapy](javascript:void\(0\);) self-treaters, and they tend to be people who are still in the early stages of treatment or with more severe, complex or longstanding health issues who need help with optimising or troubleshooting the therapy. The guide, [How to Get Help] has suggestions for best use of the group.
- [**Helminthic Therapy**] (Reddit) - 280 members.
- [**Helminthes thérapeutiques**] (Facebook) - 130 membres. Un groupe pour francophones.
- [**Helminthic Therapy**] (MeWe) - 120 members. Currently dormant.
- [**Helminthic Therapy Support**] (Discord) - 80 members.
## [Helminth](javascript:void\(0\);) incubation group
- [**Helminth Incubation Group**] (Facebook) - 1,130 members. A community of [helminth](javascript:void\(0\);) growers who are mainly cultivating **[NA](javascript:void\(0\);)**. A few have also grown their own **[HDC](javascript:void\(0\);)**, but **[TTO](javascript:void\(0\);)** is rarely cultivated by home growers due to the more complex process.
For detailed instructions on how to cultivate [NA](javascript:void\(0\);), [HDC](javascript:void\(0\);) and [TTO](javascript:void\(0\);), see [**Helminth incubation methods**] "Helminth incubation").
## Support group welcome message and guidelines
If you are a new member of one of the [helminthic therapy](javascript:void\(0\);) support groups, we extend **a very warm welcome** to you!
**1\. We have ALL the information you need!**
This [Helminthic Therapy](javascript:void\(0\);) wiki is the world’s largest database of information about the therapy.
- [**Home page**] "Helminthic Therapy Wiki")
- [**Index to topics**] "Index to topics")
- [**List of pages**] "Special:AllPages")
- [**Sitemap**] "Sitemap")
**2\. Please do not post to the group until you have at least read the introductory page.**
This includes everything you need to know in order to understand and get started with this therapy.
- [**Introduction to helminthic therapy**] "Introduction to helminthic therapy")
**3\. Before posting a question, search both this wiki and the group’s post archive.**
Most questions about this therapy are answered in this wiki or in past comments to the group. Use the search box available on every wiki page, and the group’s search tool.
**4\. We only accept posts about [helminthic therapy](javascript:void\(0\);).**
We are not concerned with any other topic, or with any form of [parasite](javascript:void\(0\);) other than the four species of [**therapeutic helminth**] "Introduction to helminthic therapy") available from the [**helminth providers**] "Helminth providers"), unless research has shown that another species, or its products, may have a therapeutic [effect](javascript:void\(0\);).
**5\. Please do not ask for [helminth](javascript:void\(0\);) provider recommendations.**
The selection of a [helminth](javascript:void\(0\);) supplier needs to be approached on an individual basis, bearing in mind the customer's location, which organism they are seeking and which pricing and payment options they prefer. All the details required in order to make a selection are on the following page.
- [**Helminth providers**] "Helminth providers")
**6\. Never mention the location - even the country - of a [helminth](javascript:void\(0\);) provider.**
This is essential to protect the providers from unhelpful regulatory attention. If you need details that are not in the wiki, contact the provider directly.
**7\. Never reveal details about [helminth](javascript:void\(0\);) shipments or their contents.**
Details or photographs of packages, or their contents, could be used to identify and block future shipments to you and other self-treaters.
**8\. This group is moderated.**
Moderators will endeavour to ensure that posts are on topic, and that the information in them is accurate. Members may occasionally be asked to edit a post or, in some cases, a post may be removed. Members who block a moderator or admin are removed from the group.
**9\. Please read the rest of our welcome message, which continues below.**
The following details include abbreviations that we use, plus information about other important matters that will help you and others get the most from group membership.
### Personal privacy on Facebook
We are a “Private” group, which means that no one outside the group can see our members’ posts. However, anyone can see the group and its members in News Feed, searches and other places on Facebook, and Facebook does encourage people to join the same groups as their friends, which it does by showing them the member’s avatar above the names of groups they are in. Unfortunately, this feature can’t be turned off, even if members prevent others from seeing the groups they’ve joined. So, if you think this might create a problem for you, it may be worth having a response prepared in case you’re asked what the “[Helminthic Therapy](javascript:void\(0\);)” group is about. This name is the only clue that others will have about what kind of group it is, but anyone who is still concerned about their friends seeing this can rejoin the group after creating a new Facebook account using an alias.
To review the privacy settings for a Private group, see [this page] in the Facebook Help Centre.
### Abbreviations we use
[HD](javascript:void\(0\);) - the rat [tapeworm](javascript:void\(0\);), Himenolepis diminuta
[HDC](javascript:void\(0\);) - the cysticercoids ([larvae](javascript:void\(0\);)) of the rat [tapeworm](javascript:void\(0\);), Himenolepis diminuta
[HK](javascript:void\(0\);) - [hookworm](javascript:void\(0\);), referring to the human [hookworm](javascript:void\(0\);), [Necator americanus](javascript:void\(0\);)
[HT](javascript:void\(0\);) - [helminthic therapy](javascript:void\(0\);)
[HW](javascript:void\(0\);) - [hookworm](javascript:void\(0\);), referring to the human [hookworm](javascript:void\(0\);), [Necator americanus](javascript:void\(0\);)
[NA](javascript:void\(0\);) - the human [hookworm](javascript:void\(0\);), [Necator americanus](javascript:void\(0\);)
[TS](javascript:void\(0\);) - the porcine (pig) [whipworm](javascript:void\(0\);), [Trichuris suis](javascript:void\(0\);)
[TSO](javascript:void\(0\);) - the ova (eggs) of the porcine (pig) [whipworm](javascript:void\(0\);), [Trichuris suis](javascript:void\(0\);)
[TT](javascript:void\(0\);) - the human [whipworm](javascript:void\(0\);), [Trichuris trichiura](javascript:void\(0\);)
[TTO](javascript:void\(0\);) - the ova (eggs) of the human [whipworm](javascript:void\(0\);), [Trichuris trichiura](javascript:void\(0\);)
[WW](javascript:void\(0\);) - [whipworm](javascript:void\(0\);), usually referring to the human [whipworm](javascript:void\(0\);), [Trichuris trichiura](javascript:void\(0\);), but, alternatively, [Trichuris suis](javascript:void\(0\);)
### We have ALL the information you need!
1\. **[Helminthic Therapy](javascript:void\(0\);) wiki**.
All the wiki’s pages can be read in any language by using the Translate tool at the foot of the left-hand sidebar on any page.
New members will sometimes reject the material in the wiki, saying that they prefer to have feedback from “real people” with “real experience”, but this is, in fact, exactly what the wiki offers. The site’s contents have been built using the shared anecdotes of thousands of [helminth](javascript:void\(0\);) self-treaters, many of whom have now left the group after having learned how to use [helminths](javascript:void\(0\);) to successfully manage their respective conditions. By collating all this past experience, the wiki offers many more examples of the real experience of real people than are available at any one time in the group. The site is updated continually and new details are added immediately they appear in the group.
![Quotein.gif]
){kind=link}
The first thing one should do when considering [helminthic therapy](javascript:void\(0\);) is read the [Helminthic Therapy](javascript:void\(0\);) Wiki. I read pretty much every page on this wiki before reaching out to order. [\[1\]]
![Quotein.gif]
The only bumps I have had as a self treater, was when I didn't check the wiki. [\[2\]]
2\. **Group guides**
The Facebook [Helminthic Therapy](javascript:void\(0\);) Support group has Guides presenting basic information on how to use the group for support. The Guides are self-explanatory, but finding them can be a little difficult. In a browser, they are located in the tabs shown just below the bar of icons of recently active members, or at [this direct link]
[![guides browser.jpg]]
){kind=link}
){kind=link}
On a smartphone, they may be located in the tabs, as shown above, or in one of several different facebook menus, such as those below.
[![HOW TO find guides phone.jpg]]
){kind=link}
 ){kind=link}
3\. **Group files**
The [files section] contains a few additional materials that may be of interest to members.
NB. When posts written before February 2017 refer to documents in the files section that can no longer be found, their contents will have been transferred to this wiki, which contains the latest details about everything.
### Obtaining [helminths](javascript:void\(0\);) and protecting the supply
There are complex differences between the products and services offered by the [helminth](javascript:void\(0\);) providers, so the selection of a provider needs to be approached on an individual basis, according to which organisms are most likely to meet the individual [self-treater](javascript:void\(0\);)’s specific needs, which companies sell these particular worms and will ship them to the [self-treater](javascript:void\(0\);)’s locality, and which services and pricing options will be most appropriate to them. Seeking, or offering, a provider recommendation is not helpful because everyone’s health issues, needs and circumstances are different. We therefore request that you DO NOT ASK THE GROUP FOR A PROVIDER RECOMMENDATION, and not just for the foregoing reasons, but also because doing this could attract comments from other members who may not have read this document and whose responses may place one or more of our providers at risk. (There’s more about this below.)
All the information necessary to make an informed choice of provider is available from the following two pages in this wiki.
- [**Helminth Providers**] "Helminth providers"). (It’s important to read the entire page and not just the list of companies.)
- [**Helminth Provider Reviews**] "Helminth provider reviews"). (Customer feedback about the quality of service offered by each of the providers.)
Since the FDA has issued an Import Alert effectively banning the shipping of all therapeutic [helminths](javascript:void\(0\);) into the US (for more about this see [**here**]PDF ansehen
"Of Poops and Parasites.pdf")), and since the Customs departments in some other countries have occasionally intercepted and destroyed packages that they believed contained [helminths](javascript:void\(0\);), we need to avoid revealing details about the shipping arrangements of the [helminth](javascript:void\(0\);) providers, especially the locations they ship from and the physical appearance of their packages. Details or photographs of packages, or their contents, could be used to identify and block future shipments.
While some providers are open about where their labs are located and where they ship from, others need to keep these details strictly under wraps. Revealing the whereabouts of a provider’s base could lead to that company being closed down and their customers losing access to the [helminths](javascript:void\(0\);) they need. It is therefore absolutely essential that members NEVER REVEAL THE LOCATION OF ANY PROVIDER IN POSTS TO THE GROUP, AND NEVER ASK QUESTIONS THAT MIGHT LEAD OTHERS TO DO THIS.
If you ever agree to be interviewed about your treatment by a representative of the media, please do not reveal where the package(s) you received were shipped from and, ideally, don’t even mention the provider by name. Just say that you got your worms from a “commercial [helminth](javascript:void\(0\);) provider”.
In view of the above, we generally avoid discussing individual providers in the group unless someone has a question that is not answered on the **[Helminth](javascript:void\(0\);) Providers** and **[Helminth](javascript:void\(0\);) Provider Reviews** pages of this wiki. If the quality of a provider’s service has fallen significantly below an acceptable standard, the relevant details can be shared using the [Provider Reviews Form] However, it is not helpful to draw attention to isolated incidences of delayed emails or deliveries, or [hookworm](javascript:void\(0\);) doses that are not viable on arrival, since these are all inevitable from time to time and not a reflection on the quality of service offered by the provider involved.
### Group focus
Our focus in this group is on the science, management, experience and results of [helminthic therapy](javascript:void\(0\);). Our aim is to share, and add to, what is known about [helminthic therapy](javascript:void\(0\);) with a view to improving our own heath and also helping others to achieve their respective health goals. We therefore welcome comments from anyone with an interest in [helminthic therapy](javascript:void\(0\);), whether researchers, clinicians, providers or self-treaters.
Due to the fact that [helminthic therapy](javascript:void\(0\);) is effective in approximately 75% of cases of inflammation, autoimmunity and allergy, most of our members eventually reach a point where they no longer need our support, and leave the group. The result of this is that many of our active members are still in the early stages of the therapy, so the discussion tends to centre around trouble-shooting - managing any initial side effects, establishing an effective dosing regimen and supporting new members through the often lengthy wait while their worms begin to work. This can unfortunately give new members the impression that this therapy is troublesome, difficult to manage and not very effective, but this is not the case, as can be seen very clearly from reading the contents of this wiki.
We are not concerned with [parasites](javascript:void\(0\);) other than the four “therapeutic” species available from the [helminth](javascript:void\(0\);) providers, unless research has shown that another species may also have therapeutic effects. Posts about non-therapeutic [parasites](javascript:void\(0\);) are generally not helpful, especially when these link to examples of sensationalist journalism and/or scary-looking photographs. In fact, these can be disturbing to members who have an aversion to worms and who may already be struggling to come to terms with the nature of the therapy.
### Post management
In this internet age, information spreads like wildfire, and incorrect information about [helminthic therapy](javascript:void\(0\);) can potentially threaten people’s safety and possibly reduce their chances of success with the therapy. Moderators will therefore endeavour to ensure that the information in posts is accurate. This will usually be accomplished by posting responses containing correct details, but it might occasionally be necessary to ask a member to edit a post or, in some cases, a post may be removed altogether.
Any posts of a commercial nature, or seeking charitable donations, will be removed, as will those that are not directly about [helminthic therapy](javascript:void\(0\);). Posts about vaccination will also be removed because these invariably invite controversy, can cause conflict, and may threaten the future of the group. There is a page in this wiki on [**helminthic therapy and vaccines**] "Helminthic therapy and vaccines") for those who want information about this.
We are not a parasitology group, nor a [microbiome](javascript:void\(0\);) or autoimmune disease group, so we only accept posts about these topics if they fall within the context of [helminthic therapy](javascript:void\(0\);), or are offered as constructive suggestions to a specific member to help with the health problems for which they are using [helminthic therapy](javascript:void\(0\);).
Members who wish to post questions relating to their own therapy should be aware that group members cannot give medical advice, and that such questions are best addressed in consultation with a personal physician and/or a [helminth](javascript:void\(0\);) provider.
When posting comments or questions about your personal experience with [HT](javascript:void\(0\);), it will greatly help other members if you include all of the following details.
- disease(s) being treated
- details of other treatment modalities that you are using concurrently with [HT](javascript:void\(0\);)
- species of worm used
- total length of time that worms have been hosted
- rough dates of doses, or the length of the intervals between them
- size of doses
When posting updates about your progress, it helps other members to follow the sequence of events if all the updates are added to a single thread. (Clicking on the date of a post will reveal its URL in your browser. This can then be copied and saved for future use whenever you want to add updates to that post.)
## History of the [helminthic therapy](javascript:void\(0\);) groups
[Helminthic therapy](javascript:void\(0\);) became a reality in 2003 when the first [helminth](javascript:void\(0\);) was made available commercially for therapeutic use. After a period of development commencing in the mid 1990s, the pig [whipworm](javascript:void\(0\);), [Trichuris suis](javascript:void\(0\);), which is sold as microscopic ova and referred to as [TSO](javascript:void\(0\);), was introduced for sale by entrepreneur [Detlev Goj] Initially, [TSO](javascript:void\(0\);) was sold through Goj’s first company, Ovamed, but is now supplied by [Tanawisa]
The next [helminth](javascript:void\(0\);) to be made available for therapy was introduced four years later, and this was the human [hookworm](javascript:void\(0\);), [Necator americanus](javascript:void\(0\);), known as [NA](javascript:void\(0\);). This enterprise brought together two men: Garin Aglietti, a former medical student, and [**Jasper Lawrence**] "Jasper Lawrence and helminthic therapy"), who was looking for new opportunities following the collapse of his marketing agency.
Together with Marc Dellerba - a clinical scientist and Lawrence’s brother-in-law - Aglietti and Lawrence formed [Autoimmune Therapies] (AIT), which began selling [NA](javascript:void\(0\);) [larvae](javascript:void\(0\);) from the clinic of a Mexican doctor, Jorges Llamas, in Tijuana. However, it wasn’t long before Aglietti found it impossible to work with Lawrence and, in 2008, left to form his own company, [Worm Therapy] while Lawrence continued to run AIT from his home in the US, supported by UK-based Dellerba.
Soon after the formation of AIT, Lawrence started a discussion group, the **[Helminthic Therapy](javascript:void\(0\);) forum** on Yahoo, which was the first online meeting place for those interested in this therapy.
In 2009, AIT began offering the human [whipworm](javascript:void\(0\);), [Trichuris trichiura](javascript:void\(0\);) ([TTO](javascript:void\(0\);)) in addition to [NA](javascript:void\(0\);), and, shortly after this, Lawrence persuaded a number of regular contributors to the Yahoo forum to accept blogs that he created under the AIT umbrella. One of these bloggers was [**John Scott**] "John Scott and helminthic therapy"), who had successfully put his Crohn’s disease and severe food intolerance into remission using [NA](javascript:void\(0\);) purchased from AIT. Scott had also begun advocating for [helminthic therapy](javascript:void\(0\);) [elsewhere online] and, after being asked to help moderate the Yahoo forum in June 2010, assumed ownership of the group a year later when Lawrence lost interest in social media and indicated that he was considering deleting the group.
Someone else who was to play a significant role in the online [helminthic therapy](javascript:void\(0\);) community for several years was a systems administrator from New York who created a Facebook account in the name of [“Herbert Smith”]PDF ansehen
"Herbert Smith and Helminthic Therapy.pdf"). After joining the Yahoo forum in 2008, Smith told Scott that he believed [helminthic therapy](javascript:void\(0\);) was ripe for monetisation, and subsequently struck a deal with Lawrence whereby he would receive a commission whenever someone he had referred to AIT followed through with a purchase. Once this deal was in place, Smith began to vigorously promote [helminthic therapy](javascript:void\(0\);), and, in November 2010, created the **[Helminthic Therapy](javascript:void\(0\);) Users Discussion** on Facebook.
Smith went to considerable lengths to promote himself online, creating accounts for his alias on Yahoo, Facebook, LinkedIn, Pinterest and elsewhere, before “friending” hundreds of people on Facebook and adding them, sometimes without their knowledge, to his group.
The relationship between Smith and Lawrence broke down when Lawrence discovered that Smith was not using his real name in his dealings with the people he approached, nor telling them that he stood to benefit financially from his relationship with them. But, when Lawrence pulled out of the deal, he failed to pay Smith what he was owed, whereupon Smith began a campaign of relentless disparagement of Lawrence and AIT.
Thanks to Smith’s promotional efforts, his Users group had, by then, become the most active [helminthic therapy](javascript:void\(0\);) group on Facebook and was increasingly used by clients of AIT as well as those of Worm Therapy, which Smith began to promote in preference to AIT. However, Smith’s strident partisan position polarised the community and left many members of his Users group feeling uncomfortable, with the result that several of them approached Scott with a request for a new “provider-agnostic” group on Facebook in which the conversation would focus on the therapy itself rather than on those providing [helminths](javascript:void\(0\);). In response, Scott created the [**Helminthic Therapy Support group**] in March 2012 - the first truly independent group run by and for the entire [helminthic therapy](javascript:void\(0\);) community.
A fourth therapeutic [helminth](javascript:void\(0\);) species was introduced in 2013 by the late [Don Donahue] a medical doctor from the US who founded [Biome Restoration] to supply the cysticercoids of the rat [tapeworm](javascript:void\(0\);), [Hymenolepis diminuta](javascript:void\(0\);), known as [HDC](javascript:void\(0\);). Donahue brought in Dellerba - who, by this time, had already left AIT - and Judy Chinitz, a nutritionist and long-standing advocate for [helminthic therapy](javascript:void\(0\);), to run the company’s laboratory and customer services department respectively. Chinitz remained with the company until Dec 2021.
In March 2014, an enthusiastic user of [HDC](javascript:void\(0\);) created the **Hymenolepis ([HDC](javascript:void\(0\);)) User Discussion and Support group** on Facebook to share experience with the new species but, like several other [helminthic therapy](javascript:void\(0\);) groups that were created for specific purposes, this only ever gained a very limited membership and has since been deleted.
Smith continued to cause discord within the [helminthic therapy](javascript:void\(0\);) community until Facebook discovered that his identity was fake and, in late 2016, deleted his account. This action removed every shred of evidence from the platform that [“Herbert Smith”]PDF ansehen
"Herbert Smith and Helminthic Therapy.pdf") had ever existed, and the Users group he had created and once so assiduously nurtured, fell into disuse as people turned instead to the [**Helminthic Therapy Support group**]
Scott created the [**Helminthic Therapy wiki**] at the beginning of 2017 to accommodate all the data he had mined over the previous 7 years from the available science and posts to the **Yahoo [Helminthic Therapy](javascript:void\(0\);) forum**, the [**Facebook Helminthic Therapy Support group**] and elsewhere. Around the same time, several new [**helminth providers**] "Helminth providers") began selling _individual_ doses of [hookworm](javascript:void\(0\);) [larvae](javascript:void\(0\);), thus freeing self-treaters from reliance on the long-term contacts by which AIT and Worm Therapy had previously sold this organism. The combination of easier access to [NA](javascript:void\(0\);) with the free availability in the wiki of detailed information about its use, ushered in a new chapter in the story of the therapeutic use of [hookworms](javascript:void\(0\);).
Easier access to [NA](javascript:void\(0\);) at reasonable prices also greatly reduced activity in a small **[Hookworm](javascript:void\(0\);) Donors group** that had been created on Yahoo in early 2013 by several Australians to facilitate the sharing of [hookworm](javascript:void\(0\);) [larvae](javascript:void\(0\);). This group, which had already become dormant as a result of the disappearance of its owner and a loss of interest by its moderators, was effectively closed in Dec 2019, when Yahoo removed all user content from its groups and reduced them to email lists. This action by Yahoo also stripped the archive of 11,000 posts from the **Yahoo [Helminthic Therapy](javascript:void\(0\);) forum**, which finally disappeared in Dec 2020 when Yahoo closed down its groups operation.
The groups that exist today are listed at the top of this page. The [**Helminthic Therapy Support group**] on Facebook meets the needs of users of all four [helminth](javascript:void\(0\);) species in an atmosphere free from both commercial bias and manipulation by those with personal agendas. However, increasing censorship on the part of Facebook, and the platform's unjustified deletion of the accounts of several [HT](javascript:void\(0\);) community members, prompted the creation of the [**Helminthic Therapy group**] on MeWe in late 2020 as a venue for those who wished to leave Facebook, and as a backup in case of the loss of the main group to action by Facebook, who were gaining a reputation in the early stages of the Covid pandemic for deleting certain health groups without warning or justification. The MeWe group has, however, remained largely inactive since its creation, with the main group on Facebook continuing to be favoured by the vast majority of self-treaters. There are also small groups on [**Reddit**] and [**Discord**] and the first group for French speakers, [**Helminthes thérapeutiques**] which was founded on Facebook in August 2021. The more specialised needs of those who are growing their own [helminths](javascript:void\(0\);) at home are met by the [**Helminth Incubation group**] on Facebook. Groups not listed above have either been archived or deleted.
## See also
The full, detailed history of this therapy.
- [**The history of helminthic therapy**] "The history of helminthic therapy").